Thursday, March 18, 2010

I'm all screwed up

Three appointments this week: CT scan, consultation with the radiation oncologist, and an appointment with Dr. Mayo.

The CT scan was so Dr. Mayo could see how extensive the ectopic bone formation is. The consultation with the radiation oncologist was to prepare me for getting zapped around the time of the surgery to prevent new bone growth. And the appointment with Dr. Mayo was for him to analyze the CT scan to decide how he wants to go about harvesting all the extra bone. ("Harvesting" is an appropriate word considering I'm what they call a "bone farmer.")

I also brought home some pictures. First is an x-ray (taken probably in January) that shows some of the ectopic bone. All nine screws and five of the seven suture pins are visible. If you mouse over the image you'll see the ectopic bone highlighted in red, the small suture pins in green, and the screws that Dr. Mayo is going to remove in blue.

The other picture is a slice from the CT scan which shows a chunk of bone blocking the front of my hip. Mouse over to see the ectopic bone shaded red.

There are more images, but they're harder to read. The CT scan shows the extent of the ectopic bone much better than x-rays, and it turns out it's more extensive than was evident from the x-rays. It's going to take some doing to get at all the bone. Dr. Mayo is hopeful he can get at it through the front PAO incision, but it's possible he might need to go back in through the SDH incision (including slicing the trochanter again, etc.) or even a posterior incision, and possibly open the hip capsule.

So instead of this being a shorter surgery scheduled in the afternoon to fill out the day's surgery docket, this will have to be the main surgery for the day.

I'll probably be in the hospital three or four days, which seems a breeze after almost two weeks last time. Although I had a perfect epidural last time, I'm going to forgo it this time in order to get back on my feet and moving quicker. Epidurals cause the blood vessels in the legs to open up, with the effect that blood washes down and pools in the legs, which made me pass out when sitting up. The sooner I'm up and moving, the better to help the swelling go down and to avoid another ileus.

Speaking of ileus, Dr. Mayo said that mine was the first true ileus he's seen in a decade. He thinks it was likely caused by having an epidural for so long (I think it was eight days, starting with the SDH and continuing to three days after the PAO).

Next up is another CT scan April 19th for the radiology oncologist to use to craft his radiation plan, followed by surgery on the 26th. For four weeks or so I'll be back on the no-straight-leg-lifting restriction, and then I can start physical therapy for real. I can't wait to get back on my bike! And Krista's probably ready for me to start driving again.

My dad's praying for a bone-eating enzyme to clean things up so I don't need radiation or surgery. That'd be nice!

5 comments:

  1. Wow, looks like a huge amount of nasty ectopic bone there ... no wonder you can't bend. It's like a hip strait jacket in there!

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  2. Indeed, I can't wait to get it out!

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  3. I will ask Dr. Mayo about it at my follow-up April 6th. My physical therapist did say that what my friend had done and what I (and you) had done were at opposite ends of the invasiveness spectrum. Yours was even worse because you had an additional surgery and more bone cutting. There is really no comparison as far as trauma to the body and recovery time. Darn!

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  4. Matt, I was so taken aback by the whole "ectopic bone" thing that I forgot to ask him about the different types of surgeries and their impact on healing time. My ectopic bone is not nearly as extensive as yours, but it may continue to grow so he won't re-check it until November. Meanwhile I still struggle to bend over and put on my shoes and socks on the left side, and have some pain with other movements, and limited flexion. I'll be waiting to hear what your next surgical experience is like since I may be having something similar next year. Terri

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  5. Sending you good vibes for Monday. I am sure this will go much easier than the last time! Want to hear all about it since something similar is in my future. Terri

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